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Event
Bruxelles, Belgium
The Vitiligo International Patient Organizations Committee (VIPOC) cordially invites european vitiligo patient leaders to attend the World Vitiligo Day conference from June 23-26, 2023. This pivotal event aims to enhance participants' awareness, understanding of medical processes, and knowledge about new patient support projects across European Union countries and beyond (UK, Switzerland, Norway, Croatia, Bosnia, etc.).
The vitiligo community is tackling new challenges:
- Transitioning from patient support to educating patients and their families on medical and scientific matters, clinical trials, and more.
- Advocating for vitiligo with health agencies and payers, providing accurate data, files, and testimonials to expedite drug deliveries and reimbursements.
- Preparing data for health authorities on a global scale, transcending national boundaries.
The provisional program for the World Vitiligo Day 2023 European meeting is as follows:
Friday, June 23rd
- Morning: Arrivals and registrations
- Lunch with available participants
- Glass breaking session: Getting to know each other quickly
- Patient engagement through education in Europe
- EUPATI's (European Patients' Academy on Therapeutic Innovation) mission and role for vitiligo patient leaders
- Patient Engagement Trainings
- National training capacities
- Action plan design and coordination among patient leaders
- Dinner and networking: Strengthening cross-understanding and exploring potential future collaborations in the EU and on a country level
Saturday, June 24th
- Morning: Scientific presentations on the latest updates in medicine processes and clinical trials
- Lunch with scientists
- Afternoon: Vitiligo burden, Patient-Reported Outcome Measures (PROM), and impact studies. A showcase of patient reports and advocacy files
Sunday, June 25th
- Vitiligo patient representatives meeting (workshops, advocacy, implementation of joint projects, training, etc.)
Monday, June 26th
- Advocacy meeting with EU representatives.
To register, please contact Nicolle Maquignon, VIPOC Vice Secretary, at nicolle.maquignon@vipoc.org
FAQOther Questions
- What is vitiligo?
Vitiligo (pronounced vit-ill-EYE-go) is a generally unpredictable skin disease that causes a gradual loss of skin color and overlying hair on different parts of the body. Cont...
- Who is prone to vitiligo?
Vitiligo can affect anyone, regardless of gender, age, or race. Vitiligo prevalence is between 0.76% and 1.11% of the U.S. population, including around 40% of those with the con...
- Is there a link between vitiligo and depression?
Yes, depression and anxiety often occur alongside vitiligo and can greatly affect a person's quality of life. The connection comes from the fact that both the skin and brain dev...
Though it is not always easy to treat vitiligo, there is much to be gained by clearly understanding the diagnosis, the future implications, treatment options and their outcomes.
Many people deal with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career.
Copyright (C) Bodolóczki JúliaBy taking a little time to fill in the anonymous questionnaire, you can help researchers better understand and fight vitiligo.