Our work is entirely funded by private donations – we receive no money from government. Your money will help us continue funding research into vitiligo and supporting people affected by the condition.
Podcast
Medical Data in the Age of AI: Should You Trust Social Networks with Your Health Scans? (Ep. 11)
In this episode, we dive into Elon Musk’s recent call for X users to submit their medical scans—X-rays, PET scans, MRIs, and more—to his new AI chatbot, Grok, to help improve its accuracy.
Musk claims Grok’s capabilities are already impressive and will only get better with user data. But is it safe to share your health data with a public AI system?
Join us as we explore the concerns raised by experts about privacy, data security, and the potential biases that could result from an unsystematic data collection approach.
We discuss why xAI’s own privacy policy discourages sharing personal information and unpack the risks, including the inadvertent exposure of sensitive details.
With AI advancing rapidly, how do we navigate the line between innovation and privacy? Tune in to find out.

FAQOther Questions
- Vitiligo and hearing loss: any connection?
Vitiligo is primarily recognized for causing skin discoloration, but it can also impact melanocytes in unexpected areas, such as the inner ear. This raises questions about wheth...
- How long does it take to treat vitiligo?
Vitiligo, a condition characterized by the loss of skin pigment, can be unpredictable in both progression and treatment. The time it takes to treat vitiligo varies significantly...
- What are rules for military service entry with vitiligo?
Military service · Patient guide How do military-service rules for vitiligo differ across countries? There is no global standard. Every country writes its own entry rules, and m...
Though it is not always easy to treat vitiligo, there is much to be gained by clearly understanding the diagnosis, the future implications, treatment options and their outcomes.
Many people deal with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career.
Copyright (C) Bodolóczki JúliaBy taking a little time to fill in the anonymous questionnaire, you can help researchers better understand and fight vitiligo.